The 28th of februari ...
Worldwide it is "rare diseases day"...
A day to write you a letter.
A day to thank you for all the support you gave us.
We told you the story of Victor, of Bertha, of Pim and a lot of others. They have Wolfram Syndrome. Most doctors have never heard about Wolfram, an ultrarare disease. It determines the rest of their lives and the lives of their families.
There is no cure (yet), the future is unpredictable, people with similar conditions don't live next door, a treatement does not exist (yet) …….
We started Eye Hope Foundation to get some hope and to give some hope.
To contact researchers aroud the world, to financially support them by setting up some research to find a treatement or a cure.
We have already reached a lot, but unfortunately the end is not yet in sight.
2020 was a cruel year!
We lost our loved ones in their battle against covid. We couldn't meet each other, we couldn't hug each other.
Eyeopener, Golf charity cup, the barbecue of V-Care, Maldegem ment for Eye Hope, all those events that couldn't happen! We missed a lot of fundings...
And still you were there with your phonecall, your message, ...
And still you kept on supporting us by donating to our fund.
Thanks to you all, we keep on having faith, we keep on supporting the scientific researchers.
Thanks to you all, Eye Hope Foundation is still the leading force behind the research done worldwide on Wolfram Syndrome.
We hope you are all doing very well!