Eye Hope Foundation

Damme Golf Charity cup

 

Last weekend we could again enjoy the Damme golf charity cup.

Again the revenues of this party were partly donated to the Eye Hope Foundation. 17,000 euros was collected to support the research into a cure for Wolfram's syndrome !! Thanks to the organization, the sponsors and the participants who made this possible!

     

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Please support Victor's teacher, Alexander Cadden, in his challenge this weekend!

Victor's teacher, Alexander Cadden, was inspired by the incredible positivity that Victor shows in his classes.

Besides the wonderful thirst for knowledge and an eagerness to learn about and engage with the world around him, Victor has tought his teacher that nothing is impossible.  As someone tells Victor that something isn't possible, his answer is always the same; 'Why not?' For Victor, the only failure would be to not have tried in the first place. 

So Victor became his inspiration in taking on this challenge. 

In Grenland, Norway, there is a challenge called the Ten-Tops-run. The aim in this challenge is to climb 10 out of a possible 17 hills between May 1st and November 1st.

This year mister Alexander will be climbing all 17 tops and to add a bit more of a challenge, he will aim to do this in one single weekend!

(9th– 10th June).

He will walk over 90km in ascents and descents together with his friend, Simon.

The first goal with this challenge is to inspire Victor, the boy who inspires him.

The second is that he wants to raise some money for the Eye Hope Foundation and to give some hope to the parents and children who are battling this cruel disease. 

YES you too can support Mr. Alexander! No amount is too small for such an extraordinary attempt! Donate now!

You can read all all about this challenge here.

Many thanks to Alexander Cadden for being a great teacher for Victor, and to support him in his daily struggle with Wolfram's disease. 

We wish him the best of luck in his challenge this weekend. 

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Aoigems Vier warms our hope

The 'warmest activity' of Aoigems vier raised 17.000 euro in total of wich 8500 euro was donated to our Eye Hope foundation.

With this gift not only the 'warmest week' got warmer, our hope was given a boost too! 


We will keep on fighting ... for hope ... for a disease inhibitor ... for a cure for all children suffering from Wolfram Syndrome. 

Thank you Aoigems Vier!

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Wonderfull day and great result on the Skimathon by Snowplus

By organising the Skimathon, Snowplus had the intention to give Bertha an unforgettable day. Besides this first goal they wanted to raise money for our Eye Hope Foundation.

The first target was reached on saturday. Bertha was shining and had the day of her life. For 1 day she forgot all about her worries. Her parents Stephan and Sophie saw how much their daughter enjoyed the day! 

After some calculations, Snowplus had to conclude that their second intention was a great succes! The skimathon raised no less than 23.854,78 EURO for Eye Hope Foundation. 

We would like to thank everyone with Snowplus to support our battle against Wolfram Syndrome so much!

Photo by Frankie and Fish

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'Expo Eyeopener' For Eye Hope Foundation on tv in Belgium

With her brother, Bertha thought of a plan to draw faces and then selling them for Eye Hope Foundation. With the gathered funds they wanted to help the scientific research on Wolfram Syndrome. 

EyeOpener is the result of their idea.

What if ... we invited a lot of children to make drawings, so we can make an exposition of those drawings? 

EyeOpener, is an exposition of artwork by famous artists and of drawings by children between 6 en 14 years old.

The theme of this exposition is "Distorted faces”, because Bertha sees things differently...

 

On Thursday the 21st of december 2017 this call will be on TV in Belgium, on the program "Iedereen Beroemd".

For praktical info : CLICK HERE

To watch the reportage on "Iedereen Beroemd" CLICK HERE: 

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'Expo Eyeopener' For Eye Hope Foundation on tv in Belgium

With her brother, Bertha thought of a plan to draw faces and then selling them for Eye Hope Foundation. With the gathered funds they wanted to help the scientific research on Wolfram Syndrome. 

EyeOpener is the result of their idea.

What if ... we invited a lot of children to make drawings, so we can make an exposition of those drawings? 

EyeOpener, is an exposition of artwork by famous artists and of drawings by children between 6 en 14 years old.

The theme of this exposition is "Distorted faces”, because Bertha sees things differently...

 

On Thursday the 21st of december 2017 this call will be on TV in Belgium, on the program "Iedereen Beroemd".

For praktical info : CLICK HERE

To watch the reportage on "Iedereen Beroemd" CLICK HERE: 

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Choose Eye Hope Foundation during 'The Warmest week' by Stu Bru


Our Eye Hope Foundation has been selected as one of the good causes for 'The Warmest week'. That is a charityevent organised bij Studio Brussel, Belgium en it takes place at the end of december every year. 

Organise an activity yourself in 'the warmest week', choose our Eye Hope Foundation and help us fight against Wolfram Syndrome. 

If you can not put up an activity, please join one of the activities below en support their dedication to our foundation. 

Let us supporty the scientific research in Wolfram Syndrome together. Lets insure that this will be the very warmest week ever!! 

1) Flemisch gouvernment - MOW - deparment Geotechnics is having a soupaction. 
Every day fresh soup is served! Be quick, because for now every day the soup was sold out at 11 am. You can have the soup is a cool personalised cup. The soup-event ends with a stew-afternoon sponsored by some colleague's.

       

2) Sylvie-Anne Ombregt is making en selling stylish candleholders 'A cup for life'. 

3) The village of Adegem shows it's warmest hart during 'AOIGEMS VIER' on the 23rd  and the 24th of december. 
start : 09:00 - end : ??
Aoigems breakfast / lunch : warm ham/ cake and coffee
Concerts by : Verenigde Vrienden Adegem / Canticorum / Tim& Thomas
Amani Bukavu : as a carpenter Luc Savat takes his kownledge and materials to a school in Bukavu.

   

 

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Looking back on the beautiful event in Maldegem

On October 1st 2017 there were no efforts spared to organise the impressive horse-event in the Sint-Annapark in Maldegem and to raise money for the Eye Hope Foundation and for the scientific research on Wolfram syndrome.

One's heart stands still as mischief happens to a child. Everyone wants to see their children and grandchildren grow up healthy and happy. Children do not avoid disaster, not even those who are born clean, well and promising, not even those who haven't lived fully yet. Parents are powerless and the child does not understand what is happening. All people involved, the environment, the grandparents, the friends and family are overwhelmed by endless sorrow, which only gently fades over the years.

The 'Moesjie' and 'opa' of Victor have organised a grand and free horse-event in Maldegem at the Sint-Annapark in order to support scientific research. The city of Maldegem, the Menning-Association of Bruges, the BDA, the Schipdonkdrivers, many businessmen of Maldegem-Center, the serviceclub Soroptimists and some colleagues doctors of the family have been enthusiastic and helpfull to make it a unforgettable event. Numerous companies from the region helped by financial of material sponsorship to this big event.

The skillrace-course and the equestrian events that the antique carriages had to fullfill in the park were a unique experience for the supporters. 
The show of the mini-horses was an attraction and to see a horse whisperer in action was a sweet and moving rarity. The ponyrides, the cours by cones and the demonstration of the horsmen were magnificent. The whole was graced with hunting horn blowers, an aperitif concert of the Royal Fanfare from Adegem and supported by backgroundmusic chosen by DJ Hannes.

The sponsorship for charity has moved many people of Maldegem. It was a fantastic and unique happening, that was admired and tasted by everyone, with in the back of their minds the picture of a glossy, handsome, healthy and defenseless child.

Compassion graces a human being. The carriers of people are those who are the basement for each others and who help carry the weight of their sorrows, those who reach out with open hands to what transcends them and fold the hands (Thomas celebration). Maldegem gave the best of itselve.

The beautiful amount of €31,000 was gathered to bring the scientists a step closer to a solution for Wolfram syndrome 

To those who still want to support this cause: www.eyehopefoundation.org.

Photo Els Stevens. Text Marianne Posman.

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